Things i already know :
- It can take from a few days to even a few years to get a call saying they have a match with your lungs.
- For you to have a match it must be the same blood type and size as your existing lungs.
- People can be an organ donor but when they die their parents/partners can have the final say and go against donating organs.
- A transplant isnt a cure just hopefully give me more years. The average life after transplant is 10 years but it differs people to people.
- After transplant you take immune sup-resent drugs which help stop your body rejecting the lungs. This also can also make you more prone to catching infections/viruses because your immune system is lowered. These infections could then potentially kill you.
- When on waiting list i cannot leave the uk.
- When on waiting list i cannot get pissed haha maybe just one drink here and there as i dont want to have to go down to newcastle if there is a call out my face :O lol.
- After transplant you cannot get tattoos because you are more at risk of infection
- I have to make sure all my teeth are healthy with no fillings required as things such as fillings can be a risk of infection.
- Recovery time after transplant can be anywhere from a couple weeks in hospital till a few months it differs to different people.
- After transplant my body will find it strange being able to take longer deeper breathes and this i will have to be taught this.
- I will have many tubes,chest drains in me when i come round after theater.
- After transplant each day you have to do a breathing test and take my temperature at home to make sure your lung function isnt going down as this could be a sign your body is rejecting.
- If your body is rejecting you will be admitted into hospital and a possible change of immune sup-resent drugs.
- I am 10times more likely to get skin cancer than anyone else so being in the sun isnt recommended and sun cream is.
- The tablets can also make my hair thin.
- If i ever want to have a child i have to make sure that the type of immune sup-resent drug i am on does not effect the fetus.
- After transplant I am allowed to mix with other people with cystic fibrosis as right now i am not incase we spread different types of chest infections.
Things i need to find out :
- Whats it like coming round after theater?
- How much pain are you in or does the morphine help block it out?
- What is it like when taking out a chest drain?
- Can i have music and pictures?
- How often would i have check ups, would it be in edinburgh or Newcastle?
- Where will the scar be on my chest and will it effect my breasts? dont want them being chopped away haha.
- Is everyone put on steroids after and will that make my face puff up?
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